Sickle Cell Disease Patients Community of Tanzania.

Miaka4 iliyopitaUmojawaMataifaulipitishatarehe 19 Junikuwasikuya Sickle Cell duniani, ilikujengauelewakatikajamiimbalimbalidunianijuuyaugonjwahuu. Mimi ni Arafa Salim Said, nimgonjwawa Sickle Cell. Na pianimwanzishiwaSickle Cell Disease Patients Community of Tanzania. Hiininitaasisiisiyoyakiserikaliyenyelengo la kujengauelewanaufahamujuuya Sickle Cell nchini Tanzania. Nimezaliwanakukuanaugonjwahuumpakahapanilipofikiasasa. Kama watotowenginemnawaonahapa, nimepitiamaumivuambayowatotowenginewenyeugonjwahuuwamepitia. Kama watotohawa, nimelazwakwenyewodihii, nimepotezafahamukwasikukadhaanapianimepatakiharusi (stroke). Sickle Cell (SC) niugonjwaunaokuwanchini Tanzania nawaathirikawenginiwatoto. Watotowengiwenye Sickle Cell wamepatakiharusiangalaumaramojakatikamaishayao. Wenginezaidiyamaramoja. Gharamazamatibabunauangaliziwawagonjwawa Sickle Cell zikojuunahivyohuzifanyafamilianyingikushindwakumudugharamahizo. Gharamazauchunguziwaawalinikiasi cha ShilingizaKitanzanialakimoja. Vile vilekunagharamambalimbalikamadawa, kuwahudumiawagonjwawanapokuwanyumbaninapiawanapolazwahospitalini. Ukubwawagharamaumesababishawatotowengikudumaa, kupataulemavunawenginekupotezamaishakatikaumrimdogo. Sisikamajamii tuna wajibumkubwakuhakikishakuwatunawasaidiawatotohawa. Kama nilivyoelezahapoawalileonisikuyaSickle Cell duniani. Tumechukuafursahiikuanzishakampeniyamwakammojayenyelengo la kusaidiawatotowanaoishina Sickle Cell. SCD Patients Community of Tanzania itafanyashughulimbalimbalikwaajiliyakuchangishafedhaambazozitatumikakulipagharamazauchu nguziwaugonjwahuukwawatoto. Tunawaombawatanzaniawaunganenasikatikakuchangishafedhahizi. Pamojanakuchangishafedha, SCD Patients Community of Tanzania inawaombawatanzaniakusaidiawatotohawakwanjiambalimbalikama vile:- - Kuchangiadamu - Kulipiagharamazauchunguziangalaukwamtotommoja - Viongozikatikangazimbalimbalikuongelea Sickle Cell nakujengauelewakwajamii. - Walimu: KuelimishawatotojuuyaSickle Cell ilikuondoaunyanyapaakwawatotowenye Sickle Cell katikajamii. - Jamiikwaujumla:Tunaiombajamiikusomanakupatauelewajuuya Sickle Cell. Mwishotunatoawitokwajamiinzimayawatanzaniakunyooshamkononakusaidiakuwapamaisha bora watotowaishiona Sickle Cell. Naopiawanastahilikusihikamawatotowenginenakufikiandotozao. Natangulizashukranizanguzadhatikwauwepowenuhapa. Arafa Salim Said
Mwanzishi / Mwenyekiti
(ALIYE MSHIKA MTOTO ) Sickle Cell Disease Patients Community of Tanzania.

Sickle cell anaemia compaign

MKURUGENZI WA NIBR DR MWELE MWALECELA

MKURUGENZI WA NIBR DR MWELE MWALECELA AKIWA KWENYE PICHA NA RAIS WA JAMUHURI WA MUHUNGANO WA TANZANIA DY JAKAYA MRISHO KIKWETE

Let’s Break the Sickle Cell Cycle in Children with Sickle

Let’s Break the Sickle Cell Cycle in Children with Sickle.
4 years ago, United Nations resolution made June 19 World Sickle Cell Day, to promote awareness because “Sickle Cell is a Global Health Problem!” My name is Arafa Salim Said. I am a Sickler. I am also a founder and Chairperson of Sickle Cell Disease Patients Community of Tanzania. It is a registered Non- Governmental Organization whose objective is to create awareness and advocate to the Sickle Cell Disease and Traits. Like all these children in here, I have seen and felt the pain that each of these children is going through. I have laid in this ward, I have been in a coma, I have had stroke and lost every sense in my body.All because of Sickle Cell Disease. Sickle Cell (SC) is growing in Tanzania. And the most affected are children. Most children with Sickle Cell Disease have at some point suffered a stroke and some more than once. The costs for treating these patients is very high. It costs at least Tsh. 100,000/- to pay for investigation fee. Most families in Tanzania with children with Sickle Cell Disease cannot afford this amount. So many children have ended up being cripples with others losing their lives. As a community, it is our role to help in breaking the Sickle Cell Disease Cycle in children. As I have noted before today is World Sickle Cell Day, and we have taken this chance to launch a one year campaign that will see us assist children with Sickle Cell Disease ease their pain. SCD Patients Community of Tanzania will host different activities to raise money that will pay for the children’s investigative fee. We need Tanzanians to join us in raising these funds. There are several ways that you as a Tanzanian can help in stopping the pain in children with Sickle Cell Disease: - By donating blood - Leaders at all levels: Talk about the state of Sickle Cell for assistance and to advocate for our SC Community. - Organisation / Individuals: Please Pay Investigate Fee at least for one child suffering from stroke as a result of Sickle Cell Disease. - Teachers: Educate children about Sickle Cell to avoid the children with SC being misunderstood in the community. - The public at large: We request that you join us to learn the truth about sickle cell, blood and donations. We need you to help persons diagnosed with SC to live. I take this opportunity to thank everyone who is here and is supporting us. We also call upon all Tanzanians to join us in giving Tanzanian children with Sickle Cell Disease chance to achieve their dream by stretching a hand to them. Arafa Salim Said Founder / Chairperson Sickle Cell Disease Patients of Tanzania

Sickle cell anaemia carriers

Mkutano wa wagonjwa sickle cell anaemia Tanzania

Shaking hands

MKURUGENZI WA NIBR

MKURUGENZI WA NIBR AKIWA ANASALIMIANA NA RAIS WA LAIBERIA HELLEN JONSON SIRLEAF

NATIONAL INSTITUTE OF MEDICAL RESEARCH (NIMR)

MWENYEKITI WA BODI YA NATIONAL INSTITUTE OF MEDICAL RESEARCH (NIMR) PROF. MASELLE AKISALIMIANA NA RAIS WA JAMUHURI WA MUUNGANO WA TANZANIA DR. JAKAYA MSRISHO KIKWETE MARA BAADA YA KUWASILI KWENYE OFISI YA ALMA.

RAISI WA JAMUHURI YA MUUNGANO WA TANZANIA AKIZUNGUMZA NA WAANDISHI WA HABARI MARA BAADA YA KUTOKA KWENYE HAFLA YA UFUNGUZI WA OFISI YAAFRICAN LEADERS MALARIA ALLIANCE (ALMA) TANZANIA

MKURUGENZI WA NIMR DR. MWELE MALECELA AKIWA NA RAIS WA JAMUHURI WA MUUNGANO WA TANZANIA DR.JAKAYA MRISHO KIKWETE MARA BAADYA KUFIKA KWENYE UFUNGUZI WA OFISI YA ALMA

President Jakaya Mrisho Kikwete and President Ellen Johnson Sirleaf

President Jakaya Mrisho Kikwete and President Ellen Johnson Sirleaf

KUTOKA KUSHOTO MKURUGENZI WA NIMR DR. MWELE MALECELA , WAZIRI WA AFYA DR. HUSEN MWINYI NA MWENYEKITI WA BODI YA NIBR PROF. MASELLE

African Leaders Malaria Alliance (ALMA)

African Leaders Malaria Alliance (ALMA) The African Leaders Malaria Alliance was founded in September 2009 by African Heads of State and Government to utilize their individual and collective power across country and regional borders-in the flight against malaria. The alliance is comprised of 44 African Heads of State and the Africa union working together to end malaria-related deaths on the continent. His Excellency President Jakaya Mrisho Kikwete of the United Republic of Tanzania was Founding Chair of ALMA from 2009 to 2011. ALMA is currently chaired by Her President Ellen JOhnson Sirleaf of Republic of Liberia with His Excellency Armando Guebuza of the Republic of Mozambique as the vice-chair.